Update: I just recently published a retrospective after being on Humira for 2 years. Pain free since then!
I have been on Humira since June 6, 2012 and it has been 3 months since I took my first Humira dosage. At first I was worried because I thought after the loader dosage I would feel good and gradually get worse since you take 4 shots the first time then 2 and then one every other week. Towards the end of May I was feeling pretty crummy and could barely get out of bed. I was getting weaned off Prednisone gradually but actually I feel better now than I did when I was on 60 mg of Prednisone. Humira really is a miracle drug! I really wonder how people got by before the biologics were around. I know I saw some literature that showed after a year about 42% of people who take Humira are still in remission. So by definition the odds are I won’t be in remission next June however I wonder if the 58% of people who are not in remission have anything in common.
I thought I was gaining weight on Humira but now am
slowly dropping (no vomiting from Crohn’s either Iike I was in May!). The pain
in my stomach is different too. Before Humira the pain was sharp like a knife
stabbing you and now if I ever have pain it is a combination of feeling hungry
and queasy at the same time which is good. Another benefit I have noticed is
that embarrassing problem I mentioned in this post
is now gone completely. In another post I had mentioned I literally felt a pain
in my backside but that however has went away. Perhaps Humira is the gift that
keeps on giving. When I was first diagnosed with Crohn’s I spent countless
hours online and kept coming across people who believed it was diet. Although,
there was some evidence (even peer reviewed) that it may be linked I highly
doubt this. From my own experience I know this because I went one week eating
no sugar and felt worse. Once I was on Humira I went on a food binge for a week
and felt like I was bulletproof. My internist who has an both an M.D. and Ph.D.
in biochemistry explained that diet and Crohn’s is garbage which I now believe
is true. People forget that Crohn’s is an autoimmune disease and not a diet
disease. Given how many obese people we have around the world if Crohn’s was
really diet related wouldn’t more than .5% of the world’s population have it?
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