Thursday, July 30, 2015

Cheese Enchiladas + Frozen Custard + Light Sleep = Crohn's Pain!



So last night I did somewhat of a no-no I had cheese enchiladas (love those things) with some refried beans and rice at a Mexican place I had never been to before (they were really good) followed by a frozen custard sundae right after. I actually could feel some gas passing as I was driving which wasn't good. When I returned home I had to go to the bathroom and had some partial bowel movements (which can happen every now and then anyways), The meal was quite good however I felt like I had ate too much. Oh add on top of that at work we celebrated the birthday of one of the partners and went to Olive Garden and had unlimited bread sticks and salad (I have the five cheese Ziti which was okay nothing great).

Anyways, I had some minor pain today. I also woke up in the middle of the night and checked my phone (not sure why). Hopefully tonight I will get to bed early and allow my gut to heal. For some reason if I get a really good and deep sleep my stomach feels like it heals. Perhaps the gut has to rest like every other body part. I will probably take it easy this weekend. My birthday is coming up soon so I know I will get to go to my choice of eating out/desserts (have to be careful since I really enjoy chocolate).

On a follow up note from my last post. My dad is thankfully back to normal. It appears he had some minor side effects of diarrhea from his antibiotic however is back to normal now.

P.S.-The picture I have above does make me want some more-until I realize the pain :-)

Sunday, July 19, 2015

Father Recently Took Antibiotic Having Bowel Issues


So the past few days my father has had some diarrhea after taking multiple rounds of antibiotics. The reason for giving him antibiotic was he recently had a minor procedure and he had a urinary tract infection afterword and of course antibiotics are usually taken to get rid of any type of infection. Yesterday he really didn't seem himself and said he had to go to the bathroom right after he ate. What is odd though he doesn't have any pain. He called our internist and he told him to take a bunch of Metamucil which is suppose to make things better. He took a probotic yesterday however I told him you really have to start taking that before you take the antibiotic. If that doesn't work then he will go in for some testing next week. I urged my dad to go to our GI instead of the internist (I trust our internist but it never hurts to have a specialist look it). At this point I doubt that it is c diff given he doesn't have any pain. If however things get worse I would change my mind about that. Hopefully, things get better for my dad since I really do care about him.

Sunday, June 28, 2015

Feeling Pretty Good Lately


So this weekend was a little interesting. On Friday I was feeling pretty good (I actually had a date that night but had to drive over an hour an half away). I took my vitamin D on Thursday so it really gave me some energy on Friday. However, before I took the vitamin D I was having some minor cramping and blunt pains in my stomach. Anyways, Friday night I was feeling good and stayed out pretty late and had a minor amount of alcohol. I got home pretty late and was really tired. I think I went to bed around 1 A.M. and woke up 6 A.M. on Saturday morning so I was really tired. I slept a little around 8 or 9 but was still tired. I actually didn't feel too bad early in the morning but after lunch it was pretty tough.

On Saturday I went to bed around 9 P.M. and was really really tired. I woke up Sunday and probably got 9 or 10 hours of sleep (however still a sleep deficit since I only got maybe 5 the night before). Sunday I felt pretty good and felt like I had good energy. My father at dinner made the comment that I looked tired though. This evening as I write this I feel pretty good but feel a little tired around 9:30 P.M. and plan to go to bed a little earlier tonight. 

I am glad I am still in remission and every day am thankful that I am not on the toilet or throwing up. I started Humira 3 years ago this month and haven't really looked back ever since. Hopefully this will continue for years to come. 

Saturday, May 23, 2015

Health Update: Flare Up Friday, Sleep, Stomach Pain, and Crohn's

man-sleep-good-how-much-300x200.jpg (300×200)

Well this weekend is Memorial Day weekend. Yesterday (Friday) I felt pretty tired and had stomach pain throughout the day. What was interesting however is that I really didn't have any loose bowel movements (I had maybe one or two). Add in to this the fact that the night before I woke up because I heard some popping noises in my apartment. My sleep wasn't that great which I think lead to the stomach pain. I took my Vitamin D pill on Thursday which actually I think helped out on Friday but still I felt not too great on Friday. When I came home from work I immediately sat in the tub with hot water and felt a little better. Around 5 P.M. I felt so tired I actually put on my pajamas and went to bed for about an hour. Before I fell asleep I remember a stabbing stomach pain in my stomach. After about an hour of sleep the pain went away (still some but greatly reduced). Last night I decided to eat lightly and ordered a Whataburger grilled chicken salad and had it with some dressing. What is interesting though is my weight is around 164 pounds (I was 160 a few weeks ago). I really would like to get back to 160 in order to fit into my work pants a tad easier. 

This morning (Saturday) I woke up and felt pretty good. I am scheduled to take my Humira tonight and usually I feel pretty good a couple of days after taking that. Vitamin D seems to make me feel really good. I call taking Vitamin D living life in high definition.

Feeling stomach pain made me remember to my days when I was really ill and it is somewhat burdensome to go back to that. Every day I am lucky and grateful that I have  drug that makes me feel relatively little pain. I started taking Humira almost 3  years ago and haven't looked back since. 


Sunday, March 1, 2015

Anal Fistula Gone and Anal Fissure Appears (Not Crohn's Related)

So the past few weeks have been interesting. I have been to my GI two weeks in a row. As I mentioned in my last post I had a fistula and I finished my antibiotics and seemed fine (I took a probiotic with each antibiotic I took to reduce the risk of c diff-since I had c diff for a portion of 2013 and it isn't fun!). Anyways last Monday at work I went to the bathroom and noticed plenty of blood in my bowel movement. I was somewhat shocked and right after called my GI to schedule an appointment. My GI was able to squeeze me in the next day (which is pretty good!). My GI has told me that generally the end of the year is busy because people are trying to reduce their health insurance deductible. Well I went to my GI and he examined me (I had to roll over and assume the position so to speak so could "check things out". After he examined me he said I had a anal fissure. I asked him if he thought it was related to Crohn's and he said no because fissures end up in unusual places for patients with Crohn's and mine was more of a garden variety of anal fissures. My GI prescribed me some cream (Hydrocortisone Acetate 2.5% Pramoxine HCI 1% for my rear)  (it is somewhat hard to apply to that area of the body) and I have been using that after I take a hot bath.

Last night I had a mini flare up (only a few hours after I took my Humira which was interesting. I was watching TV with my parents and went home and on the way home I really had to go to the bathroom. After going to the bathroom I felt 100 times better. Today (Sunday March 1, 2015) I have felt fine and back to my normal self.

Saturday, February 14, 2015

Dealing With A Fistula for Crohn's: Hot Baths Are The Answer



So a few weeks ago I went to my GI and was having some issues with my bottom and I thought it was a hemorrhoid.  However, after an examination it seems as if I had an anal fistula which is what I was a little worried about. I never really felt bad during the whole process however my rear did hurt some when I tried to lay down to sleep. On a Monday while I work I had to go to the bathroom and felt some type of foreign substance seems to pass in my stool which turned out to be puss from the fistula. According to my GI (puss must pass). My backside was feeling a little weird but after that I was feeling pretty good (there was some blood as well). After I saw my GI had to call him within 48 hours and let him know how I was doing. I have a follow up with him this week.

After my GI told me I had a fistula I asked what the plan was. I had been taking hot baths which probably seem to help the most out of anything. He told me to continue taking hot baths and he prescribed two antibiotics (I quickly pointed out my history of c diff and he said to take a probiotic-in order to reduce the chances of c diff).  I still remember my meeting at the Mayo Clinic on the fecal transplants where they said they really didn't have anyone catch c diff who took a probiotic before they took an antibiotic. My doctor prescribed Flagyl and Levaquin (just a note Levaquin was one of the antibiotics I took right before I was diagnosed with Crohn's) . The only side effects I have noticed was feeling somewhat dizzy and a little tired. My backside feels great and I really don't even feel anything is wrong with me. Everything I have read seems to indicate the surgery may be required (I have been looking up colon and rectal surgeons online and have a few that I will ask my doctor about).


Saturday, January 31, 2015

2015 Getting Off To A Good Start!

You probably thought I got hit by a bus due to the lack of posting on my blog. I am perfectly okay and doing well however have been so darn busy with work and a designation I am trying to get. Anyways, my health is still very good. The only slight annoyance is that I have blepharitis (which is an irritation of the eyelids). An ophthalmologist I saw gave me some antibiotic drops and some scrubs which seems to have helped. Today was the first day in a while I actually wore my contact lenses for the full day and really didn't seem to have any issues. Usually it takes a few days or so before my eyes get all red again. Anyways, that seems to be somewhat under control.

My Crohn's is really under control. A few weeks ago I took my Humira shot and didn't inject it properly I think because some liquid came out (more so than normal). My stomach had cramps for the next couple of days after but slowly went back to normal. The biggest thing I have noticed is that when get 8+ hours of sleep I feel amazing. Today while I was getting my car washed I read a Time magazine article about the important of sleep (not using an iPad, iPhone, or anything else that lights up before bed was mentioned). I do have a tendency to watch T.V. right before bed and sometimes look at my iPad (on top of the fact that I also work out around 7 P.M. which is a big no no. Anyways, sleep seems to still be beneficial. 

I have my regular update with my GI in April this year and as usual I will type out my list of questions and symptoms (to try to make his job a little easier). I really have no complaints. I switched over beginning January 1, 2015 to a new insurance (my father had a group plan policy from the company he retired with and due to COBRA rules I was able to stay on until this year). The policy seems to be okay so far. The Humira I order is still covered and they are still able to ship the produce from a specialty pharmacy to me. 

So I have stopped posting updates to new therapies in Crohn's because they now seem to happen all the time!! Every day it seems as if there is a new study, new drug in trial, or new insight that was not known before. The goal of this blog has always been to inform and educate people about current and new information related to Crohn's. I think down the road as I get more time I will post more Weekend Links of some good articles (sometimes those take a while to collect). It truly is amazing how the treatment for Crohn's continues to improve and the knowledge is rapidly expanding. Hopefully, one day we will find a cure and help people and families end the pain and suffering due to Crohn's disease (and ulcerative colitis).