Saturday, September 17, 2016

More Weight Loss Continues/Mild Cramping

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In my last blog post I had discussed how I was continuing to lose weight (by working out). The highest my weight got to be was 180 pounds and I have slowly been inching that down. As of this morning I was down to 170 pounds (without clothes on) which felt nice. These days I feel pretty good and have still been eating better too. My ideal weight would be about 165 pounds. Honestly, I would like to weight a little less for two reasons 1) to fit better into my pants and 2) to be able to eat an occasional dessert. Actually, I have been very good about not eating any sugar for the past month which I think has improved my sleep and my mood. I still am downing grapes like crazy (which are pretty good and decently healthy for you). Sometimes my weight comes down and then spikes up a half of pound or so. The general direction of my weight has been down which I am happy about.

Last night I went to the movies and had some serious cramping. I went to the bathroom to relieve myself and felt so much better after having a bowel movement. I felt somewhat warm during the movie and bought some bottled water (a small bottled water was $4!). During the movie I actually put it over my stomach which felt nice. When I came home I took a hot bath and put a ice wrap over my stomach which improved things. I will try to sleep well tonight so I can get oxygen to my stomach. Sleep to me seems to have a major impact on Crohn's and general health.

Friday, September 9, 2016

Weight Loss Continues

So in my last post I wrote how I was 180 pounds and had declined to 176 pounds. Well as I went I the scale tonight I was pushing only 173 pounds roughly which feels quite nice. As I mentioned in the previous post the weight gain came around my birthday-lots of desserts, cakes, and dinners plus work was pretty stressful and busy which leads to eating all types of things.

I honestly feel really good in many aspects. My diet has changed a little bit too. Before I wasn't very mindful of what I ate and basically said "whatever". These days I look at whatever I am about to eat and think "is it worth it". At night after my work out I may have a light dinner, along with some grapes, and my dessert is some cottage cheese and crackers (honestly it is pretty good!). When I home I munch on grapes to distract my stomach from getting something too rich. A big change I have made too is working out nearly every day. I honestly haven't done this since I was in graduate school. I honestly miss feeling that burn in my muscles the day after and pushing myself to be better.

The other thing I noticed is that I seem to have more energy. I honestly have really cut back on sugar so this may be a reason why. I feel as if I get more sleep even though I go to bed the same time as I did before too. This is of course another added benefit.

So I hope to continue my path down shedding weight. My ideal weight would probably be roughly 160-165 pounds which is odd because when I was there before I felt bloated. However, since I have been working out I feel in better shape then before and really am more defined.

Sunday, August 28, 2016

Recent Weight Gain/Loss

I apologize for not writing in quite some type. Work has been very busy and I have also been studying for a board exam as well. Also I have felt remission free as well so nothing really to blog about. One thing that has changed recently is my weight. No I haven't been losing weight but gaining weight. Most of my life I was always on the lean side maybe 150-165 pounds mostly and I am 5'11. When I was maybe in middle school I was heavier but then when I was about 16 I started working out. I really do love to work out. After working out I always like feeling that burn either from going on the elliptical or using weights. Unfortunately I have been so busy that I barely had time to work out. Also add in the fact that a couple of weeks ago it was my birthday which made it dessert galore (which I almost can never pass up). 

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My weight peaked out at 180 pounds which actually puts me in the near overweight category from a BMI metric. I honestly hadn't been paying attention to my weight. The only thing I noticed was it was harder to fit into my pants. I can't believe when I was in the hospital I weighed 125 pounds. When I last blogged about my weight gain was back in 2012 when I was only pushing 162 pounds (even my father made a comment about my weight gain). Something is different about then and now. When I look at myself in the mirror these days I actually look in good shape since I have been working out. Also over time I have spend more time toning my muscles which gives me a more defined physique making me looked more filled out compared to thin frame. 

I have been working out recently to bring down my weight from the 180 pounds to roughly now 176 pounds which isn't a lot but I want to still continue down the path of good health. Also I have been practicing eating healthier and have been buying grapes as a snack food to eat instead of my usual chips and cookies. I think in the long run paying attention to my health will make life easier down the road. Hopefully these small steps now will pay off in the long run. 

Tuesday, July 5, 2016

Foltx (Vitamin B) Causing Nausea for Crohn's?

Well I haven't blogged in a while (primarily since  I have been feeling good). My Fourth of July weekend went fairly well (I ate well too with a burger and some tasty Fourth of July cookies). This morning when I woke up I was fine. However, the rest of the day seemed to be a pain. Let me go back to last night when I was in bed and really didn't sleep well. I had to do something for a client this morning and kept waking up every 3 hours thinking I forgot to do something (even though the task I had to do was fairly simple). Sleep and Crohn's never mix. I honestly believe that high quality sleep causes less stomach pain/fatigue/symptoms. When I woke up though I really didn't have any pain. Around 10 A.M. I went to the dentist for a usual cleaning and that was fine. I was still doing okay. Maybe around lunch time is when I really noticed it and started holding my hand over my stomach massaging it. 

By the time I left work I felt so exhausted (my bowel movements all say were normal-however they were green which I have seen before). I was thinking to what in my life changed and I realized that I had taken Foltx the night before. One of the side effects of Foltx is nausea which is pretty much what I felt towards the late afternoon. I got off work and ordered some chicken noodle soup and a grilled chicken sandwich. After dinner I sat in a hot bath for a while and that seems to help. In a little bit I might go to CVS for a cooling pad for my stomach. Just before I put some ice on my stomach and it felt pretty good. I think this should be a temporary issue since I don't have any loose bowel movements or anything else going on.

My life recently has been stressful due the company I work for making a transition which is a promotion for me but make me much more involved. Also I am studying for a board exam toward year end as well which gives me very little downtime/social time/resting which can be a tad depressing. I know over time this will go away after I pass the exam and once I get use to my usual work duties. 

Tonight I plan to go to bed early and relax. I actually won't study for once which is nice. Stress has seemed to be in my life lately and I am trying to reduce it. Although even though I have this minor pain I am still glad I am still in remission and always am thankful for each wonderful day I am given. 

Friday, May 20, 2016

Minor Pains This Week and A Little Blood Too

I actually haven't blogged in a while (because I have been feeling relatively well-which is always a good thing). Yesterday, when I woke up and went to the bathroom before work I noticed some blood (and had an o'crap moment-no pun intended!). This past week I have felt a little worn down and tired. Also I noticed I made a few mistakes at work that I don't usually make (I guess from being tired/some blood in my bowels). Last night I got a decent amount of sleep but still not bad to normal. Not only have I been working a lot but I have also been studying for a board exam later in the year (so lots of stress). This past week I also drank a little bit (some wine) which can lead to flare ups as well. To help the situation I have been doing my hot baths which do add some benefit (I still remember when I had many bowel movement in one day and sat in a hot bath I felt as if I was cured-for the day of course).

I take my Humira shot tomorrow night. I can't believe June 6, 2016 will mark 4 years I have been on it! I am really surprised and lucky for how great the drug has worked. Recently I heard a GI say that the longest he has seen a patient last on Humira is about 12 years. This would mean I could have another possible 8 years. These days there are more options for treating Crohn's which is always a good thing. Hopefully the FDA will continue to approve drugs to treat Crohn's which will help so many people who are struggling often times in silence.

Saturday, April 9, 2016

How To Select A Colon Surgeon for Crohn's/Ulcerative Colitis

Although, I haven't had surgery yet I always prepare myself for that day and what it will mean for me. I have had Crohn's since 2011 and still haven't required any type of surgery. When I looked online though to find what to look for in a colon surgeon for Crohn's or ulcerative colitis I really didn't find anything great so I decided to write this post.

Doctors honestly go to school for a very long time (college, medical school, residency, and possible fellowship). There are many types of surgeons (orthopedic, plastic, pediatric etc.) who really specialize in only certain types of surgery. You also have general surgeons who really see a garden variety of all types of surgeries. Colon surgeons specialize in correcting diseases of the digestive tract. Colon surgeons even do colonoscopies! You can find a colon surgeon near you by using this website. Your GI or doctor will recommend a surgeon typically (sometimes they can be general surgeons). Websites you can use to find reviews of colon surgeon are RateMDs, HealthGrades, and even Yelp. RateMDs currently has the highest rated colon surgeon in the country is Dr. Bidhan Das in Houston, Texas (here is a list of the top colon surgeons in the United States). If you are curious too you can also use the U.S. News and World Report for GI/Colon Surgery here to see if there is a good center near you. Personally, I am okay with traveling a good way if the provider I can get is top notch. 

To be board certified in just general surgery a surgeon has to perform a minimum of 750 procedures in a 5 year residency with 150 procedures as the chief resident surgeon, 25 cases have to be in critical cases, 25 cases have to be as a teaching assistant. To be board certified in general surgery also requires a 300 multiple choice exam (study guide is here if you are curious what they learn). Not only do general surgeons have to take an exam but have to maintain their skills by getting re-certified every 10 years. You can check if your surgeon is certified here

After general surgery residency surgeons who want to specialize in colon surgery typically do a fellowship for additional training. I found a site that shows all the current fellowship programs for colon surgery. Programs vary in training but for instance at the Mayo Clinic their colon residents perform 150 colon resections, 80 laparoscopic colostomies, and 250 colonoscopies. After residency colon surgeons take a board exam for colon surgery which is broken into two parts. The first part is a six hour multiple choice exam followed by the second part which is three thirty minute oral exams from other colon surgeons.  Clearly once a colon surgeon practice is done with residency and their fellowship they have received a tremendous amount of education and cases regarding surgery. 

 My advice would be select a doctor who is board certified in colon surgery, that seems competent, someone that you feel comfortable with, and who has a good track record of performing cases similar to yours. Actually this article (article links to the actual study here) shows that there is an 80/20 rule in colon surgery where a handful of surgeons do most of the procedures. Surgeons who performed more than 162 resections per year had a 50% lower stoma rate and ICU rates, 30% reduction in risk of complications, and 25% reduction in the readmission rate after 30 days compared to the low-volume surgeons (less than 43 resection cases for the year). The Cleveland Clinic performs over 5,000 colon procedures a year (260 for just Crohn's). 

Questions for Surgeon (write them down/type them so you don't forget them!).

1. What has been your experience with the surgery you will be performing on me (you can ask for the number of cases they have performed)?
2. How many cases do you typically perform in a week?
3. What surgical option will give the best quality of life for the long run?
4. What are the pros/cons of performing this procedure?
5. Will you be performing the operation? 
6. What can I do as a patient to make your job easier? 
7. What is my diet after surgery?
8. When can I resume normal activities?

I typically provide the medical provider I am seeing with a detailed history of major events in my Crohn's timeline history (starting Humira, fecal transplant, flares, etc.-they really like seeing the progression of the patient).

I hope this post is helpful if you are trying to find a colon surgeon for Crohn's or ulcerative colitis. 

Friday, March 25, 2016

Prostate Issues/Crohn's and Sleep

Well not this past week but the week before I had some unusual symptoms (actually not Crohn's related). On Sunday night I kept having to get up to go to the bathroom which was pretty annoying. I didn't keep track of how many times I had to go but it was probably at least 6 or 7 (usually this is how many times some Crohn's patients have to go to the bathroom for other reasons). Anyways, I thought "well maybe I drank too much water" and let it pass. The next night the same thing happened. I was only able to sleep for maybe 4 hours and felt very tired at work (the day seems like 48 hours when you don't get your sleep). I called my internist who I was able to schedule an appointment with the next day (very efficient). I went in and explained my symptoms and his first reaction was a prostate infection. I thought this was somewhat off considering I was only 29 years old and never had this type of issue before (of course stranger things have occurred). So my doctor then did a rectal exam which I had one before in graduate school and passed out. The doctor actually did a good job after I assume the position and it wasn't invasive at all. The doctor then did some blood work and a urine sample (actually I learned that it is better to do a rectal exam before the urine test since then they can see if there is any bacterial is the urine). My symptoms have seemed to pass. I actually did have a similar issue like this back in December 2012 after taking an anti-fungal drug (frequent urination was a common side effect).

Well today is good Friday and I am off today and relaxing on vacation. I feel great and feel as if I got a good amount of sleep an will continue to do so this weekend. This time of year is busy at work with tax season but I think some rest is just what the doctor ordered (I haven't had an actual break since Christmas). Good sleep, eating light, and vitamin D seem to get me in super shape. Now all I have to do is resist the Easter candy.