Tuesday, April 24, 2012

CCFA Partners Survey

The other day I signed up for CCFA Partners. CCFA Partners is trying to enroll over 10,000 individuals with inflammatory bowel disease (IBD) in a survey to look under the issues that IBD patients face such as symptoms, medication, quality of life, etc. This information I believe will help researchers understand issues that patients of IBD face as well as possible ideas as to what makes symptoms worse or better. The idea of the survey is to survey patients around every couple of months to see how they are doing. As I write this 9,334 patients have signed up. I hope more than 10,000 people sign up so researchers can get a good understanding of what IBD patients face. This is a great way to help IBD patients help each other!

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